A Brain Tumor At My Dance Recitle

Last week, 16 years after graduating, I went back to my old dance studio. The building is different and the technique has been turned up, but the environment was just the same. The culture, the 1986 trophies, my picture on the wall, the notice about competition fees and Cecchetti ballet exams, it all brought me home. This is how I grew up. I danced on the pre-Dance Moms competition circuit for most of my life. [You can watch humbling evidence by clicking here.]

This is where I fell in love with dance, with challenging my body, with entertaining a crowd. This is where I criticized myself in a mirror for over a decade. My teachers (Karolyn, Renee, Donna, Linden) pushing for me and my dance pals to take big physical risks and to dance with everything we had, from brain to pointed toes. This is where I eventually turned away from the mirror and the competitions, and toward artistry and altruism.

Bohaty’s School of Dance in Mid-Michigan. This is where I met some of the greatest and long-lasting friendships I have ever known. If you or your children dance, you probably know what I mean.

Yesterday I walked into the studio and hugged my former student Kelly, who is now a lead teacher. An impressive one at that. I participated in the stretches and exercises then sat on the side to observe. Kelly informed the students that there was a large card on the floor they all needed to sign after class, because one of their friends has a brain tumor. Tomorrow this tiny dancer, Lauren, would be facing another brain surgery.

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I accidentally dropped my pen. Struck by the words. Another dancer. Another brain tumor. Another relapse. Another surgery.

Childhood cancer striking another dance studio.

This is Lauren. She is 10.

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As you can see by her self-made photo, she hearts dance. She also kept getting headaches. The doctors found a lemon-sized tumor in her brain 19 months ago. They did brain surgery right away and her family was told there was only a 1% chance the tumor would return.

But it did.

And so this dancer is facing another brain surgery.

This news hit a particular spot in me. Donna was a student of mine. She danced every week, despite having a brain tumor. She had a relapse. She had another surgery, and another. She learned to walk and talk all over again, several times in her four years. Read her cancer story here. She was amazing. She continues to inspire me, friends and strangers around the world to do Good Things in her name. Maybe you’re one of them.

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Donna and I on her 4th birthday.

If you’ve been following my blog, you probably know my mother is fighting breast cancer and that my father and grandmother and aunts also battled cancers. My heart and support is with them. But when it comes to this cause, my dollars and energy go to the kids.

Like the color for breast cancer is pink, the color for childhood cancer is gold. There are no NFL players wearing gold socks; no gold buckets of chicken from KFC; no overpopulous of gold ribbon water bottles. Many national cancer organizations use children’s faces but little (half a penny for every dollar donated) goes towards treatment, research or trials for children’s cancers. I wrote about this desperate underfunding in a previous blog post.

  • worldwide, a child is diagnosed ever three minutes;
  • brain tumors have a 50/50 cure rate in the US, and some childhood cancers, like DIPG, are known to be fatal with no known treatment or cure;
  • 73% of kids who survive their cancer will have chronic health problems as a result of their treatment.

And if you know this issue, you know that kids are not just mini-adults. Their cancers require specialized treatment.

St. Baldrick’s is one organization doing the most for childhood cancer. On March 24 last year, during an event produced by Donna’s Good Things, I shaved my head for the cause. We raised over $79K and witnessed the oncologists and researchers receiving the actual funds. Dr. Lulla is using the grant money for a “A Longitudinal Study of Biomarkers in Pediatric Patients With Central Nervous System Tumors.” Other programs include research in how to maybe preserve fertility for these children, as well as a nurse or specialist to better explain the processes to the kids. St. Baldrick’s is the number one funder of research for childhood cancer outside the US, granting over $125 million since 2000 to labs and hospitals.

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The First Annual Donna’s Good Things – St. Baldrick’s Event 2012

Next month, Donna’s Good Things is again hosting a St. Baldrick’s event, with shavees ages 11 to 89. I will be back in Egypt and won’t be shaving this year. But I am inspired that a childhood friend of mine has decided that she would be gracious enough to step in. She has committed to driving hours to Chicago and shaving her pretty locks. An act of courage and love, believe me. You can donate to her campaign here. Right now. Click the green button and give $5 or whatever you can.

If Donna can no longer dance, maybe we can make it possible for Lauren.

And to Lauren, we say, “Keep your dancing shoes on, gal. Keep hoping.”

 

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